I guess my big October plans will need some fine-tuning on the wake of my latest hospital stay. In good news, I have a new (local) pulmo who I like very much. He sprung me from the ICU and took on the infectious disease doc for me, and I really enjoyed his sarcasm and wit. Nevermind the fact that he took the time to get my previous tests and ct scans from Ohio State and compare them so he’d know what to do for my current situation, rather than just throwing steroids at me and hoping for the best. According to him (and what I’ve read agrees), this is what this disease does. You go along just fine for a while, maintaining, and then BOOM! One day you’re not fine any more. A flu, or cold, or something sets you off and it’s out of control. I was really bad when I got to the hospital, and feel lucky that it was only a 6 day stay. The new guy recommended that I go ahead and be evaluated for a lung transplant, because at some point in the future I’m going to be “not fine” again and at that point it will be too late for an evaluation. Not to be listed, mind you, just to have all the legwork in place just in case. I guess options are good, but I didn’t want to think about that.
The kids are coming home today, and I’m excited about that! I’ve missed them terribly, especially since coming home two days ago. The house is empty and quiet with no little boys running around. Funny, because I think a couple of weeks ago I was wishing for just a few minutes (hours) of peace and quiet, and it was impossible to come by. Now I’ve had my share of peacefulness for a while, and I will embrace and enjoy the chaos of little boys for the time being. My mom tells me my youngest kept saying, “Mommy’s sleeping” – he’s never been away from home this long so I’m glad he handled it okay.
That’s about enough update for now. So many things wrong with that stupid hospital and oh how I wish I had the energy to be someone who worked on changing those things. But right now I only have the energy to worry about me and my immediate surroundings, so it’ll have to slide. It’s good to be home.
